Well, I finally got all of the results back for all my tests. I do not have fatty liver disease. I do not have NASH or MASH. I do not have cirrhosis of the liver. My liver is not failing or anything stupid like that. What I do have is autoimmune hepatitis and sarcoidosis. I have what? I have sarcoidosis which is an autoimmune disease that causes granulomas to form in mostly connective tissues in your body. For me, these granulomas have formed in my liver. They have triggered an autoimmune response causing me to form antibodies which in turn are attacking my liver. Hence, the chronic hepatitis.
Is there a cure, well no. I can try to change my diet if I can figure out what triggers the autoimmune response. Sarcoidosis is a chronic nasty little disease that a person can have for years. It normally affects the lungs. So, I need to have a chest x-ray to take a look in my chest cavity to see if any granulomas are forming.
Since it's an autoimmune disease, I'm seeing a rheumatologists since they deal with it a lot. I found a doctor on Zocdoc that specializes in sarcoidosis. I see her on October 21. I've also been trying to get in touch with the Mayo Clinic in Jacksonville, FL to see if I can get an appointment for a workup. I have a feeling some of my meds are contributing to some of my problems, and I am not sure if they are all still working for my benefit. For instance, I have been craving chocolate, but not just any chocolate, M&Ms, which do not really raise my blood sugar all that much which is surprising since I've been popping them like, well like candy. I thinks it's the serotonin and dopamine I'm craving.
I'm not sure of what kind of treatment I can get if any. The most common treatment is corticosteroids but I can't take steroids because they cause my blood sugar to skyrocket. Dr. Raina mentioned a medication but I couldn't find it. Anyway, she told me to follow up with my PCP or a pulmonologist. I decided to go to a rheumatologist.
So how do I feel about it? I don't know I was very surprised when I heard the news. I guess I'm glad I don't have some dreaded liver disease, but I'm a little miffed that I have something that will cause me to suffer later on in life. I guess I should admit it. I'm depressed. I didn't do any school work last week, so I failed last weeks quizzes. I should be doing that right now, but I'm having a great deal of motivational issues. I don't really care. Right now I'm more depressed because my eyesight is going downhill. For the past 2 weeks I've had really blurry vision. I can only see if I wear my glasses. It's 2.5 magnification, and without them I can't see the screens and even watching TV is blurry. I got so bad I called my eye doctor and went in for an urgent visit. my right eye is 20/40 and my left eye is 20/70. I'm not exactly sure what that means, but it is upsetting.
I'm turning into an old lady and I'm not ready. My joints pop, and I have mysterious aches and pains. I'm just not ready to deal with my mortality right now. I'd rather live in my bubble of make believe and keep thinking that I'm about 35 years old. Why can't I?
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