Sketches of a Bipolar Girl: Excuse me? I have What?!

 

Well, I finally got all of the results back for all my tests. I do not have fatty liver disease. I do not have NASH or MASH. I do not have cirrhosis of the liver. My liver is not failing or anything stupid like that. What I do have is autoimmune hepatitis and sarcoidosis. I have what? I have sarcoidosis which is an autoimmune disease that causes granulomas to form in mostly connective tissues in your body. For me, these granulomas have formed in my liver. They have triggered an autoimmune response causing me to form antibodies which in turn are attacking my liver. Hence, the chronic hepatitis. 

Is there a cure, well no. I can try to change my diet if I can figure out what triggers the autoimmune response. Sarcoidosis is a chronic nasty little disease that a person can have for years. It normally affects the lungs. So, I need to have a chest x-ray to take a look in my chest cavity to see if any granulomas are forming. 

Since it's an autoimmune disease, I'm seeing a rheumatologists since they deal with it a lot. I found a doctor on Zocdoc that specializes in sarcoidosis. I see her on October 21. I've also been trying to get in touch with the Mayo Clinic in Jacksonville, FL to see if I can get an appointment for a workup. I have a feeling some of my meds are contributing to some of my problems, and I am not sure if they are all still working for my benefit. For instance, I have been craving chocolate, but not just any chocolate, M&Ms, which do not really raise my blood sugar all that much which is surprising since I've been popping them like, well like candy.  I thinks it's the serotonin and dopamine I'm craving. 

I'm not sure of what kind of treatment I can get if any. The most common treatment is corticosteroids but I can't take steroids because they cause my blood sugar to skyrocket. Dr. Raina mentioned a medication but I couldn't find it. Anyway, she told me to follow up with my PCP or a pulmonologist. I decided to go to a rheumatologist. 

So how do I feel about it? I don't know I was very surprised when I heard the news. I guess I'm glad I don't have some dreaded liver disease, but I'm a little miffed that I have something that will cause me to suffer later on in life. I guess I should admit it. I'm depressed. I didn't do any school work last week, so I failed last weeks quizzes. I should be doing that right now, but I'm having a great deal of motivational issues. I don't really care. Right now I'm more depressed because my eyesight is going downhill. For the past 2 weeks I've had really blurry vision. I can only see if I wear my glasses. It's 2.5 magnification, and without them I can't see the screens and even watching TV is blurry. I got so bad I called my eye doctor and went in for an urgent visit. my right eye is 20/40 and my left eye is 20/70. I'm not exactly sure what that means, but it is upsetting. 

I'm turning into an old lady and I'm not ready. My joints pop, and I have mysterious aches and pains. I'm just not ready to deal with my mortality right now. I'd rather live in my bubble of make believe and keep thinking that I'm about 35 years old. Why can't I? 

Sketches of a Bipolar Girl: Come to Me My Melancholy Baby

 

It's been a little over a week since I got my diagnosis. I've had time to sit with it and reflect. What is my reaction to the whole thing? Mostly, it's What the fuck? I have looked over my life and how I have or have not taken care of myself. I think that my 6 suicide attempts and years of taking pills have caught up with me. I have ruined my body's disposal. 

The liver filters out all the toxins in your body. It would seem that I have overloaded the system and caused some liver damage. It's rather ironic, that now that I am content in my own skin and want to do something with my life, I may end up killing myself after all. 

I suppose I could say that the whole thing is bringing me down. On top of that, I haven't been able to keep my blood sugar under control. It's been in the 300s or even 500. I haven't been eating sugar or a lot of carbs, so I don't know what it's from. I'm tired all the time. I think I have a UTI. My bladder hurts, and I have to pee like 10 times a day. As a result, I'm dehydrated. I don't want to see the doctor again. I'm sick of doctors. 

My liver biopsy is scheduled for Sept. 16th. I have to admit I'm nervous. It's not as quick and easy as I thought. They take several pieces of the liver, not just one. Also, I'm going to be sedated. I didn't think it was that complicated. I guess I've been in a bit of denial. 

I keep telling myself that this won't kill me, but the I think of Grandmom and Aunt Berta. Especially Aunt Berta. She got sick so suddenly, and then she was gone. I don't want to die like that. I'd prefer to get killed by a lion. It's my spirit animal, so I feel it would be appropriate. 

I've had enough of this day already and it's on 6 am. Today is going to be a melancholy day. I wish I could take the day off. I just want to stay in bed. Oh, I met someone on Tik Tok. At least I think I've met someone. He may be a bot. I'm not quite sure. But that's another conversation. 

Peace - B